The Health Innovation Exchange

Health innovation technology to improve care and treatment of haemophilia

Haemophilia is a rare, yet widely dispersed condition, both in New Zealand [1] as well as other countries such as America. Due to the nature of this health issue, there are several challenges for the provision of healthcare services[1]. Over the last decade, there has been an increased development in health information technologies, one in particular is a simple, yet comprehensive internet based monitoring and communication application, termed Advoy[2]. Created by Baxter, now managed and upgraded by ATHN (, Advoy helps both patients and their health professionals monitor and manage their condition respectively. This tracks patient progress through electronic logs, and can alert the health professional to any changes and therefore give guidance, support or make changes to their patient’s medications[2]. This changes the treatment approach from being reactive due to the collection of paper-based self-monitoring, which is reviewed most often only in emergency situations or at patient visits. Advoy moves this to a proactive approach where the health professionals can track various events such as bleeding episodes or commitment to medication. Therefore, providing a tool that is effective, efficient and convenient, given the current situation. However, this technology can be and has been further developed and drive additional change one way is through the use of mobile devices such as the iPhone, iPad and iPod[3]. Having the benefit of convenient communication between health professionals and their patients, particularly those of high risk is a significant leap in improving the quality of care as well as patient autonomy and control. Further information relating to Advoy and the upgrade ATHNadvoy can be found at


1.         Park, J. and D. York, The social ecology of new technologies and haemophilia in New Zealand [electronic resource] : a bleeding nuisance revisited / Julie Park and Deon York, ed. L. University of Auckland, et al. 2008, Auckland, New Zealand: Auckland, N.Z. : Dept. of Anthropology, University of Auckland, 2008.

2.         BAXTER INTERNATIONAL INC - Advoy Program Promises Better Control And Greater Freedom - For People With Hemophilia, in Market News Publishing2002. p. 1008106w5546.

3.         ATHN. ATHNadvoy: Connecting patients and providers for better care- anywhere. 2011  [cited 2012 28/04/2012].


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Comment by Kannan Subramaniam on September 7, 2012 at 22:01

Great post Bhavisha. This is an important unmet need - a community for those with haemophilia, their carers, and their healthcare professionals to work together in optmising the management. Way back in 2004 New Zealand’s National Guidelines for the Management of Haemophilia encouraged patients to record all bleeding episodes and details of their product usage. Today's technology permits us to do just that and more. While there already are a few options like Advoy, they are limited in functionality, mostly availble in North America and mostly restricted to either haemophilia A or B or to those who use certain products supplied by the companies who develop them. There now is a tailor-made solution, Tracker FACTORy, for all New Zealanders with haemophilia A & B irrespective of what barnd of product they use. I will present the development, clinical context and technology constructs for this digital tool that is available as an iPhone app and as a web application in a poster at HINZ 2012 in Rotorua in November. Come and see us at HINZ 2012.

Comment by Vishakha Sagar Jahagirar on October 2, 2012 at 0:47

 Really very useful post. After reading your article I went through many relevant articles. The new software ' Advoy ' which has developed to assist hemophilia patients and their healthcare professionals to manage their disease.  Patients and healthcare providers will be able to gather and share important treatment information and detect trends that may improve individual clinical outcomes. This is really very helpful for prognosis of patients as it will help a physician to access different parameters to track patients progress. In developing countries, this will prove very much effective.

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